Define your generation here. Generation What
The everyday practices of surviving mental health ableism
 
 
Drawing by Ola Abulshalashel, a young artist in Cairo who struggled with mental health and is no longer with us.
 

I try to be the ideal bipolar. I try to perform my illness in the most rational and grounded way. I try to contain my episodes so they do not seep into my intimate and close relationships. Contain it and contain myself, so I don’t offend you with my instability and intensity. I try to be the acceptable bipolar, the one who can talk about the disease as if it’s as inconvenient as a hang nail. Lest I allow it to unsettle you with its erraticness or its unpredictability. I listen to your comments as you internally congratulate yourself on your acceptance and tolerance of neural diversity. You make the joke that everyone is bipolar too and how labels are so passé; I nod and hide my cringing insides under a tightly pursed smile. You tell me you love me, but my intensity can be exhausting, because you love giving constructive feedback; I swallow that slap across the face and let out a little chuckle and vow to never display my intensity to you again. I will learn to do better next time. I tell you about my sadness, I tell you about my grief, I tell you about my anger and anxiety. You hear me out with an invisible little smirk, I can feel it and see it, I hear it loudly, even though you don’t say it. My flooding emotions are not valid, since you cannot see a causal reality linked to them. My emotions burden you, whether or not they touch you, whether or not they invade your choices and will. Their presence disturbs you even though they ask nothing of you. When my mind is reduced to utter nonsense you find it hard to hear me, you find it even harder to hear me after you witness my mind and cognition falter, even when time has passed and they no longer falter. I drop some names, Foucault and Derrida and I drop some words, “subject” and “difference,” I pray that I have redeemed myself with my intellect so you can restart to hear me. You don’t want to isolate me and you wish me the best from a distance where my bipolar cannot disturb you. I absorb your judgment and try to do better next time. I try and educate you, so that I do not feel your judgment, I do so because I do not want to be isolated. 

Fifty percent of people with bipolar disorders have attempted suicide at least once, twenty percent have succeeded. In both April 2013 and April 2017, I got so close to what would probably have been botched attempts, but miraculously, at 37, I have managed to dodge being a statistic. Both times, I was having a manic episode. As someone with bipolar 1, I tend to have more manic episodes than depressive episodes and I tend to have more mixed episodes than I do simple manias. In a manic episode, there is a lot of energy. I can feel euphoric, elated at times; the mania colors the world as I perceive it. Colors are brighter and more saturated, empty space is speckled with glitter, catching and reflecting light in a million different colors. I am more likely to trust strangers and place myself in risky and unsafe situations. I will not only feel loved by the people around me, but worshiped and adored. My thoughts, writings and ideas are great — no, not just great, phenomenal. For about five minutes. And then with the same charge, I will feel despised, worthless, and regretful of all my life choices. As I alternate between one state and the other, with no rhyme or reason, my perception of depth becomes altered, the solidity of things becomes questionable and I become confused and anxious, losing touch with my existence within my lived chronology and body. I become haunted by the shadows that flit across my field of vision to a soundtrack of deafening sounds and screams. I can imagine how hard this must be for you to witness, so please, I understand, do keep your distance. 

For years, I refused to be on medication. I had a really bad experience when I was first diagnosed 18 years ago. As of April 2017, I have managed to find the right combination of therapy and medication. For years, I put all my energy into holding the pieces of reality together as my brain waged a war against my senses, my logic and thought processes. I had never imagined that a pill could do this for me — hold my mind together so I can continue with my life, uninterrupted. Every episode had required a cleaning up period following it, whether it be physical injuries needing to be tended to, or professional, social and romantic redemption. Life was often unforgiving, so instead I tried to forgive myself and forgive the bipolar disorder, yet work harder on containing it. I accumulated exhaustion with every episode, with the amount of time, energy and resources that were required in my everyday life to manage them. Schedules, routines, nutrition, therapy, writing, processing, sleep, exercise and reflection help minimize their frequency and intensity, but the cruel joke is that these are the very same things that an episode dismantles before reaching its crescendo. You kept my inconvenience at arm’s length. Every time I pulled through, I either did it on my own, or had invested in deconstructing your biases, vetting and educating you so that you could be there next to me.

The times I wanted to end my life, there were three thoughts slamming about and around in my head, throwing snippets of other thoughts and self-perceptions into the air like confetti. One: I couldn’t take the pain I was experiencing right now and wanted it to end now; Two: I couldn’t take the pain resulting from wanting it to end it now and being fearful and resistant to ending it now; Three: even if this pain passes, as it always does, it will also come again, as it always does. Over the years, my ability to resist and to be optimistic has become worn out. Being able to go on, before the medication, came with having an extensive support system of friends that could hold my hand and bring me down from the edge, whenever I was endangering my life. My life depends on a support network that has taken decades to create. This support network is large enough that I can strategically rotate through it. In those moments, living wasn’t a question of what I wanted or didn’t, but whether or not, by relying on my support system, I was able to get through the episode intact. 

Finally, being on the right medication has really helped me, but it took over a decade for me to be able to trust that the mental health establishment would be able to help me. I have been to more harmful therapists than I have been to ones that could actually help me. I have taken more medication that has exacerbated my condition than I have medication that actually helps. I have known more people whose words and actions, subtle and overt, conscious and unconscious, have alienated me, than were able to embrace me. The level at which I am able to manage this condition is not proportional to the support that was readily available to me, but to the labor that I was able to devote to creating a support system, a task I will never deny was made easier because of class privilege. I resent that those of us who have chronic mental illnesses have to do this to survive, above and beyond the energy that is exerted merely to live with a forever unstable and shifting reality. 

AD